Dementia Caregiver’s Corner

Having Compassion And Understanding for Those Living With Dementia - Nduduzo, South Africa

Episode Title: Having Compassion And Understanding for Those Living With Dementia -

Nduduzo, South Africa

 

Repost. An enlightening and touching episode this week as your Host Juliah Ratladi talked down with Nduduzo, from Kwazulu-Natal in South Africa.

 

Nduduzo discovered his Grandmother was unwell when he came home for his mother’s funeral and soon discovered that she was living with dementia. He decided to do something really special and gave up his work to look after his Grandma because he felt he owed it to her to give back after she had looked after him.

 

Nduduzo has no training, but did extensive research into the needs of, and care for, those with dementia and his compassion and patience is inspiring.

 

Grandma also joins the call so you will get an opportunity to see what it takes to patiently work with someone who doesn’t always understand the world around them.

 

Find Nduduzo and follow along with his journey here:

 

TikTok:

https://www.tiktok.com/@nduduzo_kay

 

Follow Juliah Ratladi/Dementia Caregivers Corner Podcast on social media:

 

Instagram: https://instagram.com/dementiacaregiverscorner?utm_source=qr&igshid=MzNlNGNkZWQ4Mg%3D%3D

 

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https://twitter.com/DementiaCorner

 

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https://www.facebook.com/profile.php?id=100087493920768

 

Do you want to be a guest? email us on: dementiacaregiverscorner@gmail.com

 

Dementia caregivers` Corner Podcast is available on the following platforms

 

Apple Podcast: https://podcasts.apple.com/us/podcast/dementiacaregiverscorners-podcast/id1710778347

 

 Spotify: https://open.spotify.com/show/6JeVOQteK08zsc7PTkRNTT

 

Podbean: https://feed.podbean.com/dementiacaregiverscorner/feed.xml

 

Amazon Music/Audible: https://music.amazon.com/podcasts/c6e17ee2-f194-4eae-b906-a854078dd530

 

TuneIn/Alexa: https://feed.podbean.com/dementiacaregiverscorner/feed.xml

 

iHeart Radio: https://iheart.com/podcast/125013574

 

Player FM: https://player.fm/series/3517995

 

 Podchaser: https://www.podchaser.com/podcasts/dementiacaregiverscorners-podc-5494017

Can Love and Loss Be Captured on Film? Kimberley Littlemore on Documenting Her Parents’ Dementia

Episode Summary:

Most families don’t fully understand dementia until it affects their own loved ones. For award-winning documentary filmmaker Kimberley Littlemore, that moment came when both her parents were diagnosed with Alzheimer’s disease. Realising how little she knew about dementia—and how few films captured the lived experience—she turned the cameras on her parents’ journey, creating a powerful series that blends personal stories with expert insights.

 

In this conversation, Kimberley opens about her parents’ diagnosis, what she learned as both a daughter and a filmmaker, and why films based on lived experience are so vital in raising awareness and reducing stigma around dementia. She also reflects on her work with the BBC, her contribution to a new book on dementia and sensory changes and offers advice on which mediums—film or documentary—might create the biggest impact in regions like Africa where dementia is still widely misunderstood.

 

Main Points Discussed

Kimberley’s journey from filmmaker to daughter documenting her own parents’ Alzheimer’s diagnosis and lived experience.

 

The importance of sensory and perceptual changes in dementia, and her contribution to A New Approach to Dementia.

 

A candid discussion on the impact of films vs. documentaries in creating dementia awareness in Sub-Saharan Africa.

 

Key Takeaways

Lived experience matters — Films showing real family journeys can raise awareness and break stigma in ways textbooks and statistics cannot.

 

Dementia isn’t just memory loss — Sensory changes and behavioural symptoms are often overlooked but deeply affect daily life.

 

Storytelling is powerful — Whether through documentaries or feature films, visual storytelling helps families, caregivers, and communities better understand dementia.

 

Resources Mentioned

Visit https://pocketmedic.org/dementia to watch Kimberley’s parents’ raw, real-life dementia journey unfold on film.

Still Alice (Drama-Film)

A New Approach to Dementia: Examining Sensory and Perceptual Impairment

Slipping Away: One Man`s Battle with Alzheimer’s` Disease

 

Rethinking Dementia Care with Dr. Éthelle Lord: Staffing, Communication, and Real Solutions

In this episode of Dementia Caregivers Corner, we’re joined by Dr. Éthelle Lord, a leading expert in dementia care, Master Dementia Coach, and creator of the Transactional Dementia Intelligence (TDI) model. We explore the critical challenges in long-term care, including staff-to-resident ratios and communication gaps between families and care providers, and discuss how these impact both residents and caregivers. Dr. Lord also explains her Lord’s Theory on the psychology of the dementia brain, and how new care models like TDI are shaping better outcomes in dementia care.

 

Key Points Discussed

 

Staffing Challenges: How low staff-to-resident ratios affect residents’ emotional and physical care.

 

Communication Gaps: The importance of effective communication between families and care teams.

 

Innovative Care Models: Introduction to the Transactional Dementia Intelligence (TDI) model and how it differs from traditional approaches.

 

Key Takeaways

 

Consistent staffing improves relationships, understanding, and wellbeing for both residents and caregivers.

 

Engaging families and caregivers in care planning enhances quality of care and reduces stress.

 

Learning and applying new models, like TDI, helps approach dementia care holistically and personally.

 

Let me take this time and Thank you, our dear listeners, for tuning in to this episode! If you enjoyed our conversation with Dr Lord or are passionate about dementia care, please consider leaving a review and sharing this episode with someone who might benefit from it. Your support helps us reach more people and raise awareness about dementia-related issues

Unseen and Devastating Challenges Faced by Children of Parents Living with Dementia in Sub Saharan Africa

Repost: In this inspirational episode Juliah sat down with Andrias Mungundu, an newly registered nurse and an advocate for dementia rights and education in Namibia.

 

Since his mother’s experiences with dementia Andrias has worked with organisations and government to overcome the stigma of dementia in African communities where people are often accused of witchcraft.

 

His mother’s experiences with lack of understanding and treatment had massive impacts on the family, but Andrias was determined to support his family

 

He espouses very human and sympathetic ways to care for people with dementia, arguing that they need the same sort of patience we have for small children as they need to be cared for how they cared for their families in life.

 

So listen in and be inspired by Andrias and his journey.

 

Find Andrias here:

 

LinkedIn:

 

https://www.linkedin.com/in/mangundu-andrias-54b91a246/

 

Follow Juliah Ratladi/Dementia Caregivers Corner Podcast on social media:

 

Instagram: https://instagram.com/dementiacaregiverscorner?utm_source=qr&igshid=MzNlNGNkZWQ4Mg%3D%3D

 

LinkedIn:

 

https://www.linkedin.com/in/juliah-ratladi-dementia-care-awareness/

 

Twitter:

 

https://twitter.com/DementiaCorner

 

Podcast Facebook Page:

 

https://www.facebook.com/profile.php?id=100087493920768

 

 

 

 

Do you want to be a guest? email us on: dementiacaregiverscorner@gmail.com

 

Dementia caregivers` Corner Podcast is available on the following platforms

 

Apple Podcast: https://podcasts.apple.com/us/podcast/dementiacaregiverscorners-podcast/id1710778347

 

 Spotify: https://open.spotify.com/show/6JeVOQteK08zsc7PTkRNTT

 

Podbean: https://feed.podbean.com/dementiacaregiverscorner/feed.xml

 

Amazon Music/Audible: https://music.amazon.com/podcasts/c6e17ee2-f194-4eae-b906-a854078dd530

 

TuneIn/Alexa: https://feed.podbean.com/dementiacaregiverscorner/feed.xml

 

iHeart Radio: https://iheart.com/podcast/125013574

 

Player FM: https://player.fm/series/3517995

 

 Podchaser: https://www.podchaser.com/podcasts/dementiacaregiverscorners-podc-5494017

When Dementia Touches Home: A Family Story of Strength and Sensory Awareness with Donna Houston

Episode Summary:

 

In this episode of Dementia Caregiver’s Corner, Donna, daughter of dementia activist Agnes Houston, shares her experience supporting her mother through early-onset Alzheimer’s. She reflects on the early signs, challenges, and the emotional journey of caregiving, offering insights into maintaining family bonds and navigating gaps in support systems.

 

3 Key Points:

 

Recognizing early signs matters: Identifying behavioral changes early can lead to timely diagnosis and better planning for care.

 

Caregiving shapes relationships: Dementia care can both challenge and strengthen family bonds when approached with compassion and communication.

 

Support systems are crucial: Families often face gaps in formal support, making community, healthcare, and social support vital.

 

3 Takeaways for Listeners:

 

Observe and document early behavioral changes to help with timely dementia diagnosis.

 

Maintaining patience, empathy, and communication strengthens caregiver-patient relationships.

 

Seek support from family, community, and professionals to prevent caregiver burnout and improve the quality of care.

 

This episode provides insight, practical advice, and hope for families, caregivers, and anyone navigating dementia care.

 

#dementiacare, #Alzheimerscare, #early-onsetdementia, #caregiverssupport #caregivertips, #BPSD, #familycaregiving #SensoryImpairment

 

If you found this episode helpful, please leave a review and share it with someone who might benefit. Your support helps raise awareness about dementia and improves support for caregivers worldwide.

What Happens When Dementia Affects the Senses? Agnes Houston’s Lived Experience

Episode Summary

In this episode of Dementia Caregivers’ Corner Podcast, we explore the often-overlooked sensory and perceptual challenges faced by people living with dementia. Our guest, Agnes Houston MBE, diagnosed with early-onset Alzheimer’s in 2006, shares her lived experience and international research through her Churchill Fellowship and her books Talking Sense and A New Approach to Dementia. Agnes opens up about how sensory changes affect daily life, why the voices of people with lived experience matter, and how her work continues to shape dementia care and awareness worldwide.

 

3 Key Topics Discussed

 

The sensory and perceptual challenges people with dementia face, from sight and sound to touch and taste.

Agnes Houston’s lived experience, research journey, and recognitions such as the MBE and Churchill Fellowship.

The importance of including voices of people with lived experience in dementia research and care practices.

 

3 Takeaway Points

 

Sensory changes are a significant but often overlooked aspect of dementia that can greatly affect daily life.

Practical strategies—like awareness, family support, and informed care—can help manage these challenges.

Empowering people with dementia to share their experiences is vital for shaping better services, understanding, and policies.

 

Resources Mentioned

A New Approach to Dementia: Examining Sensory and Perceptual Impairment.

Agnes Houston`s eBook: Talking Sense: Living With Sensory Changes and Dementia

https://podcasts.apple.com/nz/podcast/honouring-jennifer-josey-1944-2024-a-journey/id1710778347?i=1000686624853

What Happens When Memory Fades? Sharon Lukert’s Story with Mild Cognitive Impairment

Episode Summary

 

I am naturally loud, anyone who listens to my podcast or knows me personally can attest to that. But in this episode, my loudness mellowed. My guest brought peace, warmth, and love that were indescribable. She may not know it, but just by chatting with her, she brought me to a place of calm and stillness.

In this episode, I sit down with Sharon Lukert, a retired Buddhist chaplain and author of Until My Memory Fails Me. Sharon shares her deeply personal journey of living with Mild Cognitive Impairment (MCI) while drawing from over 20 years of experience supporting others through illness, grief, and end-of-life care. Together, we explore what it feels like to notice the first signs of memory loss, the emotional weight of seeking a diagnosis, and the everyday practices that make life meaningful.

This heartfelt conversation also looks at the role of spirituality, mindfulness, and community in coping with cognitive decline, not only for those directly affected but also for their families and caregivers. Sharon’s story is one of honesty, resilience, and compassion, offering hope and wisdom for anyone navigating similar challenges.

 

Key Takeaways

Early signs of MCI can be subtle but emotionally impactful, prompting reflection and the need for understanding.

Practical routines and coping strategies help maintain independence and ease daily life with cognitive changes.

Spirituality and faith can provide grounding, hope, and strength in navigating memory loss.

Connection and community are vital for both individuals and families, offering support, resilience, and shared meaning.

 

Key Topics Discussed

Sharon’s personal experience of living with Mild Cognitive Impairment.

The emotional journey of seeking and receiving a diagnosis.

The role of spirituality and interfaith chaplaincy in dementia care.

Inspiration and message behind Sharon’s book Until My Memory Fails Me.

 

Resources Mentioned

Sharon Lukert`s book " Until My Memory Fails Me" #USA

https://podcasts.apple.com/nz/podcast/living-with-dementia-dallas-dixon-reveals-what-real/id1710778347?i=1000702828681    #USA

https://podcasts.apple.com/nz/podcast/repost-c-o-r-e-c-a-r-e-principles-in-dementia-care/id1710778347?i=1000704567569 #Australia

https://podcasts.apple.com/nz/podcast/honouring-jennifer-josey-1944-2024-a-journey/id1710778347?i=1000686624853 #UK

 

Connect with Sharon from the following platforms;

Website: https://www.sharonlukert.com/

LinkedIn: https://www.linkedin.com/in/sharon-lukert-36266912/

 

If you are passionate about MCI or dementia-related issues, please share this episode with someone who might benefit from it. Until then, I’ll see you in the next episode.

 

Navigating the Journey: A Daughter's Tale of Love and Loss with Lynnette Lee, UK

Repost: In this poignant episode of "Dementia Caregiver's Corner," host Juliah Ratladi is joined by Lynnette Lee, author of "Slipping Away: One man's battle with Alzheimer's," for a heartfelt conversation about the journey of caregiving and resilience in the face of Alzheimer's disease.

 

Join Juliah and Lynnette as they delve into Lynnette's personal story, beginning with her father's diagnosis and the challenges she encountered in accessing support and resources. Through candid anecdotes and heartfelt reflections, Lynnette shares the highs and lows of her caregiving journey, offering listeners a glimpse into the complexities of caring for a loved one with dementia.

 

Despite the challenges, Lynnette also highlights the brighter moments she experienced while spending time with her father, emphasizing the power of love, connection, and cherished memories amidst the difficult realities of Alzheimer's.

 

Tune in to "Dementia Caregiver's Corner" for an intimate and inspiring conversation that illuminates the journey of caregiving, celebrating the resilience and strength of caregivers like Lynnette Lee. Learn from her experiences, find solace in shared stories, and discover the transformative power of love in the face of adversity.

 

Find Lynnette here:

 

X

https://x.com/LynnetteLee_Alz?t=nUKEta5ccmwWnmGlIqPz_g&s=09

 

Find her book here:

 

https://www.amazon.com/Slipping-Away-mans-battle-Alzheimers-ebook/dp/B097H7Y15W

 

Follow Juliah Ratladi/Dementia Caregivers Corner Podcast on social media:

 

Instagram: https://instagram.com/dementiacaregiverscorner?utm_source=qr&igshid=MzNlNGNkZWQ4Mg%3D%3D

 

LinkedIn:

 

https://www.linkedin.com/in/juliah-ratladi-dementia-care-awareness/

 

Twitter:

 

https://twitter.com/DementiaCorner

 

Podcast Facebook Page:

 

https://www.facebook.com/profile.php?id=100087493920768

 

Do you want to be a guest? email us on: dementiacaregiverscorner@gmail.com

 

Dementia caregivers` Corner Podcast is available on the following platforms

 

Apple Podcast: https://podcasts.apple.com/us/podcast/dementiacaregiverscorners-podcast/id1710778347

 

 Spotify: https://open.spotify.com/show/6JeVOQteK08zsc7PTkRNTT

 

Podbean: https://feed.podbean.com/dementiacaregiverscorner/feed.xml

 

Amazon Music/Audible: https://music.amazon.com/podcasts/c6e17ee2-f194-4eae-b906-a854078dd530

 

TuneIn/Alexa: https://feed.podbean.com/dementiacaregiverscorner/feed.xml

 

iHeart Radio: https://iheart.com/podcast/125013574

 

Player FM: https://player.fm/series/3517995

 

 Podchaser: https://www.podchaser.com/podcasts/dementiacaregiverscorners-podc-5494017